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Sunday, September 27, 2020

Donna’s Farm

Meningioma (AKA brain tumor) farm that is.


Yesterday around 4 PM I had another seizure—similar to what I had after this past January’s bean surgery. This time though, I was conscious for 90% of the floor show. 


Lemme just tell you, this ain’t no party, this ain’t know foolin’ around.


The tremors started in my left foot (HEY, isn’t that a movie?!) and moved up the length of my ultra sexy skin suit. When my head started shaking uncontrollably, I put the edge of the blanket between my teeth (luckily I was in bed when this went down). So, no biting my tongue or lips—yea me, huh?



I managed to call for Ten before the DonnaQuakes reached my head. He snagged Jen and they called 911. The rescue squad arrived, seemingly, in micro-moments. This may’ve been my when I had the blackout interlude though.


In any case, off I zoomed to my home away from home, MGH, in the ambulance with the awesome EMTs.


Given that we’re still in Plague45 times, Jen and Ten couldn’t come with me. Insert big frowny face here. Just as well actually. Hangin’ in the ER, the endless waiting for what happens next is such a drag. I would’ve felt guilty that they spent a beautiful Saturday that way.


As of 10 PM, I’d had a CAT scan, 1,002 blood tests and spoken with two neurologists. This morning I’ll have an MRI and speak with a neurological team. Wheeeee!


The word, at this point, is that brain surgery is unlikely to go down this week. I’ll probably go home later today BUT a craniotomy looks inevitable and a lot closer on the horizon than anticipated.


The immediate plan, at this pre-Plotkin/Barker discussion point, is to get me back on Keppra (anti-seizure med) and prednisone (brain swelling shrinker).


Better living through chemistry and all that.


I’d have thought I’d be more freaked and shit but I knew I’d be up for a third go ‘round this year—no surprises here. That and I’ve done this seizure/ambulance shit before. I know the ropes and just can’t be bothered getting my panties in a twist...at least not right this mo.


I have Ten, Jen and Oni at home to take care of me and, it looks like, every neurologist at MGH is on my case. Sometimes it pays to have a rare disease, eh?


All that’s missing right now is CAKE and Coco.


Pics today, BTW, are from Oni—sent to cheer me up. It worked.


DO forgive the wretched spacing/layout. I’m doing this from my phone which blows royal, turd encrusted Bantha wang.

Maggie’s Farm—Bob Dylan