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Saturday, February 6, 2021

Well, this blows giant sandworm schwanz

Last night was convulsion night here in the Maderer/Ten Bears household. Why? Me bod was off to the races, doing the shake, shack, shake action.

Yes, I had yet another goddamned, motherfucking seizure. It’s precisely two weeks since the last one. I guess my skinsuit’s on a tight, regular schedule.

As I’ll bet you already know, this was annoying, odious as fuck. hurl inspiring, scary as hell and just plain skeevy.

This one was worse than the last BUT I was able to stop
the electrifying convulsion snakes before they managed to disco farther north than my tum-tum (better living though a LOT of chemistry). Yea me – no loss of consciousness, no midnight ride into the ER. The Rescue Squad and EMTs came out to make sure I was all stable, not ODing on anti-seizure meds and to, if I had the need or desire, tote my ass into MGH.

I’ve got the soundtrack for these events locked in now. I start with Helter Skelter:
When I get to the bottom I go back to the top of the slide
Where I stop and I turn and I go for a ride
 Till I get to the bottom and I see you again
And
that’s honestly how it feels – without the happy zeal of the ride of course. I'm not in control. Who do I see when I get to the bottom? The very worried faces of Jen and Ten in addition to the crowd of friendly but serious  medics – all waiting to see what tricks I’ll perform next.

When the worst is over, when it’s clear that I DON’T need to check into the ER, the internal jukebox moves onto Richard Thomson’s Wall of Death which isn’t as dire and depressing as it sounds.
Let me ride on the Wall Of Death one more time
You can waste your time on the other rides
This is the nearest to being alive
Oh let me take my chances on the Wall Of Death
In fact, it's upbeat and, basically, my life philosophy.

Both songs are about carnival rides and I hate carnival rides. Having said that, they are, for me and maybe you too, the best, most poetic way to explain, to illustrate my life in the Neuro Dome.

I don’t know where we go from here. I believe, in the short term, I’ll be getting a different med to take IN ADDITION to my zillion and a half daily doses of Keppra. 
I have emails in to Dr.Plotkin and Jen’s been on the horn since Zero Dark 30. We’ll sort this shit out eventually.

The best part? I get to sit in bed all day with Coco – snarfing cookies, reading and adorable creature-scrolling.

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